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You may know that wildly fluctuating blood sugars can negatively affect your autoimmune disease -making it worse and exacerbating symptoms – but HOW do you know if your blood sugar is fluctuating? Learn how in this post.
In the last post, I explained why blood sugar fluctuations can be bad for your autoimmune disease health and long-lasting freedom from symptoms. If you haven't read that, I highly recommend doing so before reading this: Read How Blood Sugar Affects Autoimmune Disease
Once you've got an understanding of how detrimental fluctuating blood sugars can be, you might have a desire to know if that's happening to you, right? I mean, that's what I'd want to know!
In this post, I'll go over the “normal” ranges of blood sugars, some tests you can do at your doctor's office to determine if you're outside of these ranges a lot, and then some tests you can do at home that will help you determine if specific meals or foods are causing you to go outside of these ranges.
If you'd rather WATCH all of this instead of read it, you can do so by watching this video below!
What is normal?
To start off, you need to know what is considered to be normal.
This can actually vary quite a bit depending on the source you are referring to – a functional medicine practitioner uses tighter ranges than a conventional doctor, for instance, and even between the various diabetes organizations and conventional doctor groups, there are discrepancies.
So for simplicity, we'll take a number that is close to most of these and say that 70 – 100 mg/dL is a “normal” range. This is 70 – 100 milligrams of glucose to each deciliter of blood.
In non-US countries, you'll probably be using millimoles instead – so that would be around 4-5.4 mmol/dL.
Anything outside of this range would be considered either high or low.
What happens when you're outside of these ranges?
Now to be clear, if you go outside of these ranges, especially slightly higher (some say 120, some say up to 149) than the normal amount, it's not going to be much of a problem, especially if it's for a short period of time and you come right back into the normal range.
What's more of a problem is if you go really high out of the range, go higher than the normal range quite frequently, or spend a lot of time out of the range. This is where your body is going to be producing cortisol and other detrimental effects I talked about in the last post.
Alternatively, your body almost always produces cortisol when you go lower than the ranges – this is a stressful situation for your body.
Either way, you might feel specific symptoms when you go outside of the ranges as your body deals with a higher or lower amount of glucose than normal.
Using symptoms to determine blood sugar fluctuations
One of the easiest, least invasive, and no-cost ways to determine if you're having blood sugar fluctuations is to go off of the symptoms you have after a meal.
Typically you should NOT have any symptoms after a meal, but if you do have any, it may indicate a blood sugar going higher or lower than normal. (Though it also could be a reaction to the food if you have an intolerance to it)
This method is the vaguest and hardest to know whether you are high vs. low, but it will help you to know that at least something is going on and you might want to dig deeper.
Low blood sugar symptoms (hypoglycemia)
When you're experiencing a blood sugar lower than 70 mg/dL (4 mmol/dL), you may experience one or more of the following symptoms. (Do note that for some people who tend to be at higher overall blood sugar for an extended period of time may feel these symptoms at 85 mg/dL or lower):
- Cravings for sweets
- Desire to eat EVERYTHING in sight.
- Irritability and grouchiness, especially if it’s meal time and you’re not eating (Hangry)
- NEED coffee for energy
- Lightheadedness between meals, esp if it’s meal time
- Fatigue is eased if you eat
- Feeling shaky, jittery, faint, weak
- Feeling agitated, like something is off and you just can’t figure out why
- Easily become upset
- Memory is bad, you forget things easily
- Blurred vision
- You might be cold – or your extremities might get cold (and this is different than a Hashimoto's kind of cold – it's more acute and goes away once your blood sugar is normalized)
High blood sugar symptoms (hyperglycemia)
- Tired after meals – you really feel like you want to take a nap
- Constantly hungry
- Sugar cravings – including ones that don’t seem to be relieved by eating carbs and you feel like you HAVE to have carbs/sugar – and I will say the difference for me with low vs high sugar cravings is that I’m low I feel faint, weak, and almost instinctually know I need sugar but don’t have actual “cravings”. It’s just this need. But when high I feel like my body is buzzing with energy and I really want sugar. Like I can’t stop thinking about it kind of craving. It took me a while to figure out this distinction but it’s really helpful.
- Dizziness
- Anger (I find this to be beyond grouchiness and irritability – it’s like you just are angry at everything and people know to stay away from you when you’re like this kind of thing)
- Longer term – if you have some insulin resistance and get higher blood sugars often you might notice an increased need to pee, more thirst than usual, inability to lose weight, and migrating aches and pains
Using these symptoms as a tool
Next time you eat a high-carb meal or food, pay attention and see if you get any of these symptoms.
At the same time, pay attention next time you have a low or no-carb meal as well.
If you're getting symptoms from carby meals and not from low or no-carb meals, this also is an indicator to dig deeper.
Testing from a doctor
The following tests are going to be something you can get from your doctor, and they'll typically show more that you have an overall trend towards high sugars rather than helping you to know if a particular meal is affecting you. These will be helpful to know if you're having a lot of high blood sugars and/or spending a lot of time in a higher range.
If you feel any of the above symptoms and get one of these test results out of range, it's an indicator that your autoimmune disease most likely won't be helped on a long-term basis until you can balance your blood sugars.
HbA1c (Hemoglobin A1c)
The HbA1c test is a 3 month “average” of your glucose levels. When sugar circulates throughout your bloodstream, it attaches to hemoglobin, a protein in your red blood cells.
Everyone has some sugar attached to their hemoglobin, but people with a lot of sugar circulating throughout their bloodstream (so those with higher blood sugars) have more attached.
The HbA1c test measures the percentage of your red blood cells that have this sugar-coated hemoglobin.
The normal amount is under 5.7%.
The problems with this test are that it doesn’t necessarily show if you’re having fluctuations of high blood sugar and coming right back down into the normal range, rather than just spending a lot of time with high blood sugars. Either one isn't great for autoimmune disease though, so there is that…
And it also doesn’t show if you go low often. It's called an average, but it’s only essentially showing the amount of time you’re higher than usual. Sugars don't get removed from the hemoglobin if you have a low, so if you spend 70% of your time higher than the normal blood sugar ranges and 15% of the time lower, it will just reflect that 70% of the time you're high. So it's not the best diagnostic tool to determine if you get a lot of low blood sugars.
But it's a good test to see if your blood sugars have been higher than normal for the last 3 months.
Fasting Glucose
The next test is fasting glucose. This test is performed after you have not taken in any calories for at least 8 hours.
This test again is helpful for knowing if you have a metabolic issue where you're blood sugars are probably out of range for a large portion of time. Theoretically, if you are chronically high, your fasting glucose will be out of range as well.
If you ARE out of range (high) it could indicate insulin resistance, pre-diabetes, or diabetes, but from an autoimmune disease standpoint, it means your body is probably pumping out more cortisol than you need to be, exacerbating symptoms and causing immune system dysregulation (plus organ damage can happen as well).
So this is a good one to take in conjunction with the HbA1c just to find out if you're within the normal range.
Oral Glucose Test
The Oral Glucose Test is usually 2 parts – the Fasting Glucose test and then you drink a solution of 75 g of sugar and get your blood sugars tested at 1, 2, and sometimes 3 hours after. (Some labs will only do 2 hours)
A blood glucose at 2 hours post-drink of 140 mg/dL (7.8 mmol/dL) would be considered normal and anything above that could potentially indicate insulin resistance, pre-diabetes, or diabetes, but also exacerbation of autoimmune disease issues.
However, sometimes these tests can also be off if you say, had a bad night of sleep, are sick, in the middle of a flare-up of autoimmune disease symptoms, really stressed, etc – so it is something to maybe do more than once if you get a result higher than 140 the first time.
But more than one test of 140 does seem to point to the cumulative effect of high blood sugars and an inability for your body to process the glucose in your blood. Again, best used in conjunction with an HbA1c to get a longer-term picture.
At-home blood sugar testing
The following are two ways you can test your blood sugar at home to determine if you're having blood sugar fluctuations.
These will only reflect that particular moment in time, so unless you do it often it won't show any trends towards higher or lower blood sugars, but these tests are super helpful in determining if certain meals or foods are affecting your blood sugars negatively. It also can really help you to determine if you get low blood sugars.
Glucose Meter (glucometer)
You do need to prick your finger and draw a small amount of blood, so that might be a problem for some, but it shouldn't hurt very much and you do get used to doing it.
To use a glucose meter, you use a lancing device (a retractable needle) to prick your finger and get a small drop of blood. You then place that blood on a test strip in the glucose meter. After a few seconds, the meter will give you a number – that's your current blood sugar number.
These are nice because you can test now and then again in 30 minutes (or any interval of time) to see if it’s changed – all at home, within seconds, and without having to wait for a lab to give you results, etc. You can also use it frequently to start to identify trends.
I recommend you do a few tests before and after all of your meals initially just to get an idea of what your blood sugar does, but after that I think it's only necessary if you experience symptoms or if you're really trying to determine if a particular meal or food affects you. If doing the latter, I recommend testing before you eat, and then again at 1, 2, and maybe even 3 hours after.
Frequent testing like this will help give you a picture of what happens after you eat and whether you get a spike (either high or low), gradual rise, or not much of an effect at all. It also may help you to understand if you stay at a high range for a long time afterward vs. spiking just for a few minutes and then returning to normal (or going low).
Test strips can be expensive, but we have found that the Contour Next and Dario brands are not too bad and are compact enough to take with you in your purse or pocket (good to see how a restaurant meal affects you).
Continuous Glucose Monitor (CGM)
Specifically, it measures the interstitial fluid between your cells and not your blood directly, but it's been found to be accurate in determining blood sugar levels.
It helps fill in all those gaps that you get when only testing occasionally with a glucose monitor to get a complete picture of what your blood sugar is doing, all day and all night.
However, it is quite expensive and also could be a bit of overkill for many people. It's definitely NOT a requirement to figure out if your blood sugars are fluctuating.
But for those of you who really want to dig deeper, find out what else might affect your blood sugar (stress, heat, and exercise just to name a few), and really get your blood sugars into range, it can be a really insightful and helpful tool.
I personally have been wearing a CGM for several months and have really found it helpful for correlating those symptoms I mentioned at the beginning of this post with whether I have a higher or lower blood sugar, as well as finding out how things like exercise, stress, lack of sleep, etc affect my blood sugar, and for dialing in my diet so my blood sugars don't fluctuate nearly as much. (This is the program I use to get my CGM – Levels Health)
Conclusion
You now have several methods of finding out whether your blood sugars are higher or lower than the normal range and perhaps affecting your autoimmune disease in a negative way.
The technology changes constantly as well, so there could be new methods soon that will be even more accurate, less invasive, less expensive, etc. So if this is something you need to dig deeper on, pay attention to those as well!
But the bottom line is that using at least one of the above tools – and maybe a few together – can help you to know if blood sugar is something you need to worry about.
SEE PART 3 –> Part 3 of this series is my own personal experience using a Continuous Glucose Monitor for several months. See what I've learned, what spikes my blood sugar, and how it's helped me adjust my diet to balance my blood sugars. What I've Learned From Wearing A Continuous Glucose Monitor
Hi Michele,
I’m Type 1 diabetic (36 yrs) and more recently diagnosed with Hashimoto’s. I did fairly well on Keto or low carb but was dealing with extreme fatigue so recently was put on AIP but am struggling with what to eat because of the higher carbs in food swaps like sweet potatoes and cassava. My blood sugars aren’t doing good even though I’m tracking carbs and i’m dealing with insulin resistance now. In addition i don’t know what to use in place of honey, maple, coconut aminos etc that cause glucose spikes. Previously I used allulose or monk fruit. Struggling to make AIP work with diabetes. Desperate to feel better and be healthy but feeling overwhelmed and discouraged. Is your son on AIP or are you eating lower carb to avoid blood sugar spikes? Wondering how to adapt AIP with diabetes.
Ugh, yeah, I’ve really come to realize how hard it is to make lower-carb baked goods on AIP… So my son is not on AIP and really kind of eats mainly a lower-carb, gluten-free diet these days (as in we keep him around 130 g of carbs a day because his endo freaks out when we go below 100 g too many days in a row and he seems to do ok with around 130). But in trying to be lower carb myself, wearing a CGM to understand what my BG is doing, and then developing AIP-baked good or dessert or whatever recipes I’ve really realized how much they can be carb-heavy! I actually did a keto-AIP back in 2014 for a few weeks, but it was mainly just eating veggies and meat each day, no baked goods or other sugary-things (mainly because there WEREN’T any recipes back then, ha). Here are some things you could do though – instead of buying coconut aminos, make your own using this recipe: http://meljoulwan.com/2014/03/01/substitute-soy-sauce-coconut-aminos/ and omitting or reducing the molasses. I’d just make a big batch and freeze in an ice cube tray, then when frozen pop out and put into a freezer-safe container or bag for long-term storage. And then because you do have a special situation, if you DO make any baked goods or desserts (and I’d do this on an extremely limited basis, like once a week max), use allulose or monk fruit as your sweetener instead of coconut sugar, etc. AIP is meant to be a tool to help you feel and it can be modified if necessary and in special situations like this. But I’d definitely keep it on an occasional basis because both of them do have the potential to feed bad gut bacteria. And otherwise, if possible I’d just stick to eating lower carb veggies and meat/seafood as much as possible. That’s pretty much what I still do these days, though I do eat sweet potatoes, carrots, beets, and squash, etc. Oh, and I’m going to be posting my “What I learned from wearing a CGM” video tomorrow and in that I explain how the quantity of carbs really makes a difference in my BG too, so maybe play around with the amounts – like only a 1/2 cup of sweet potatoes and see what it does vs. a full cup, etc. I’ve learned that if I do smaller quantities it really doesn’t make too much of a spike or cumulative effect so I’ll fill my plate with like 1/2 cup of sweet potatoes and then the rest will be things like broccoli or brussels and meat/seafood. That way I still get my “fix” of carbs but it’s not as problematic. Hopefully those help…
Oh – and if you haven’t already checked out Castaway Kitchen, she’s got a lot of AIP Keto recipes that may help as well. https://thecastawaykitchen.com/recipes/?fwp_diet=aip%2Cketo
I’m in the process of trying to put the nutrition data on my recipes but so many times the automatic nutrition thing has been wrong, so it’s a really long and arduous process to correct it and make sure it’s right (so I wouldn’t always trust those nutrition labels at the bottom of blogger’s recipes – better to plug the recipes into something like MyFitnessPal and figure it out there so you have control over the actual results)
Oops! I also wanted to comment to ask how you might adapt your diet if you did find your blood sugar to be consistently high or low? I recently switched to AIP (two weeks in…:D ) and was a vegetarian for years and years, so am finding it harder to “fill myself up” without grains and beans. I often feel a bit hungry, and have to have second helpings, where I never would have before.
Thanks again!
Part 4 of this series (which should be out next week) is actually going to be about what to do to balance blood sugar if you’re finding issues, but I will say that if you’re new to (a) AIP and (b) not eating grains and beans, it’ll take a little while to adjust. Either one of those would do this, so it’s completely normal. It’s ok to have 2nd helpings right now because that’s just what your body wants. You may also want to up the fat slightly as that may help you feel more satiated and perhaps some of the more fibrous veggies like broccoli and brussels sprouts might help as well.
Hi there!
Thanks for this and all of your great content and recipes. 🙂 Just wanted to let you know that both high and low blood sugar are listed with the heading “hyperglycemia” above! <3
All the best! 🙂
Oh geez – thanks so much for pointing that out! Just one of those things that I must have glossed over when reviewing. Appreciate it!